PATIENT ORGANIZATIONS

Click on a Patient Organization name to go to the respective website, or scroll down to see descriptions of each site.

American Cancer Society
Association of Cancer Online Resources
Cancer Research and Prevention Foundation
CaP CURE
Leukemia Lymphoma Society
National Children’s Cancer Society's "Beyond the Cure"
National Childhood Cancer Foundation
The National Coalition for Cancer Research
National Coalition for Cancer Survivorship
National Prostate Cancer Coalition
Melanoma International Foundation

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American Cancer Society: 

Website information available in Spanish and in Asian Language Materials.

• Information for family members to learn about cancer, treatments, and how to cope with a family member having cancer.
• Networks available to cancer survivors.
• Volunteer opportunities.
• Professional opportunities: data, research programs, and jobs.
• Information on how to detect cancer early and how to quit smoking.
• Medical News Updates.
• Discussion Board.
• Community Event News.
• 1-800-ACS-2345

 

Association of Cancer Online Resources:

• Mailing list for a link to online communities.
• Support and Resources: coping with Cancer.
• A-Z list of types of Cancer: most common and least common.
• Treatment options: current treatments
• Clinical Trials: experimental treatments.
• Cancer related book publications.
• Volunteer opportunities.
• Cancer News links.
• 212-226-5525

 

Cancer Research and Prevention Foundation:

• Cancer information areas regarding: breast, cervical, colorectal, lung, oral, ovarian, prostate, skin, and testicular cancers.
• Cancer prevention in the News.
• Educational Materials available online: brochures, fact sheets, Por su salud y por su familia (information available in Spanish).
• Web based games that teach healthy choices.
• Cancer education programs available online (one link in Spanish available).
• Cancer Research information.
• Advocacy information.
• Information to make donations
• Annual Reports.
• Advice to recently diagnosed cancer patients as to which steps to take to treat the cancer.

 

CaP CURE

• Prostate Cancer Foundation.
• Information about Prostate Cancer.
• Information on the Prostate Cancer Foundation.
• Research supported by PCF.
• Events sponsored by the PCF for fundraising purposes.
• Donation opportunities to PCF.
• Report on treating Prostate Cancer (mainly aimed to Physicians treating the cancer, but informative to patient’s as well).
• Prostate Cancer News, including a newsletter to which people can sign up to receive.
• PCF News.
• PCF Therapy Consortium. 

 

Leukemia Lymphoma Society

• Patient Services: for the newly diagnosed, to find support, to stay informed, free materials, discussion boards, and questions and answers.
• Disease information on: leukemia, lymphoma, myeloma, other blood cancers, treatment and clinical trials, free materials, and national education workshops.
• How people can help: by donating, volunteering, participating in events, sponsoring The Leukemia and Lymphoma Society, or send a postcard inviting others to help.
• Information on all forms of advocacy.
• Information on The Leukemia and Lymphoma Society, how to contact them, employment opportunities with the Society, the Society calendar, and Press room information.
• Medical News
• Press Releases
• Society News

 

National Children’s Cancer Society's "Beyond the Cure"

• Information on “survivorship”, those that have succeeded with their battle against cancer.  This includes: general information, current news, work and employment, insurance, advocacy, healthy living, resources, and spirituality. 
• Information on “late effects” after the treatment of cancer.  This includes information about: medical, educational, fertility, psychological issues, grief, insurance, and work and employment.
• Personal Profile opportunities.  An opportunity for “survivors” to input as much information about their diagnosis and treatment so that they can anticipate their medical future.  This section is dedicated to educating survivors and their caregivers about the medical and cognitive late-effects specific to an individual's diagnosis and treatment.  Based on the input, a risk profile will be formulated.
• Information about Behind The Cure, including: The National Children’s Cancer Society, partners, educational material, and donations.
• Information on how to contact the society.
• Link to The National Children’s Cancer Society and to the Children’s Hospital in St. Louis.

 

National Childhood Cancer Foundation

• CureSearch.org: combined efforts of the National Childhood Cancer Foundation
  and the Children's Oncology Group.
• Information which addresses all aspects of the care of children with cancer.
• Information for parents/family of children recently diagnosed with cancer, in treatment, end of treatment, and after the treatment. 
• Information for patients newly diagnosed with cancer, in treatment, at the end of treatment, and after treatment.
• Information for Health Professionals before diagnosis, during treatment, and after treatment. 
• Childhood Cancer Overview, including: types of childhood cancer, diagnosing cancer, childhood Cancer is different, what is a clinical trial, progress, statistics, and FAQ.  Also listed, the member hospitals of the Children’s Oncology Group.  
• Opportunities to help either by donating, participating, sponsoring, and advocating. 

 

The National Coalition for Cancer Research

• A non-profit organization, comprising 26 national organizations, dedicated to the eradication of cancer through a vigorous public and privately-supported research effort.
• Congress and Cancer: Legislative updates and news, testimony, policy priorities, and position statements.
• Information about Cancer and Cancer Research.
• Cancer 101 Congressional Briefing Series.
• About the coalition and their members.
• Audio and video public education and awareness messages.
• Glossary of Cancer terms.
• Links to government sites, other Cancer sites, Cancer journals, and other health-related sites.
• Facts Sheet including facts and figures about Cancer, Cancer research makes sense, Cancer Research: to be or not to be, and Clinical trials and Cancer research.
• Link about the members and about the coalition.

 

National Coalition for Cancer Survivorship

• Information for survivors and caregivers.  Learn how to deal with side effects, pain, end of life issues, clinical trials, issues of heart and mind (how to deal with psychological effects), essential care for children, nutrition, exercise, financial help, employment rights, health insurance, and care giving. 
• Resource guide including information on the different types of Cancer, essential care, Cancer centers and Cancer-related information, and a list of links to services including advocacy, information in multiple languages, and legal services, etc.
• Glossary of terms used on the website.  There is also a link to a Cancer Dictionary.
• Link to the Cancer survival toolbox at http://www.cancersurvivaltoolbox.org/.
• Opportunities to help by donating, volunteering, supporting, or receiving the NCCS’s Washington Report (email updates). 
• Information about NCCS, Advocacy and Policy, Programs, Resources, and News and Events.
• Access to IRS filings and contact information.

 

National Prostate Cancer Coalition

• Founded in 1996, mission is to reduce the burden of prostate cancer on American men and their families through awareness, outreach, and advocacy.
• The National Prostate Cancer Coalition has built a vast network of partners including Former New York City Mayor Rudy Giuliani, Major League Baseball and NASCAR.
• Contact Information.
• Information on NPCC, including: the staff, board, the organization’s history, awards, partners, sponsors, and internships.
• Opportunities to Contribute.
• Education: basic information on what is Prostate Cancer, ways to find out if you’re at risk for Prostate Cancer, learn more about screening, facts and figures, and educational material as well as educational links to other websites.  Opportunity to register for “Aware” the largest online weekly newsletter all about Prostate Cancer.
• Treatment Information: for those recently diagnosed, treatment options, and help with dealing with emotional, financial, and physical impacts.
• Advocacy information: policy initiatives, research funding, influencing lawmakers, opportunity to write to Congress, advocacy resources, state coalitions, and spring training.
•  Programs: Calendar of Events, Drive Against Prostate Cancer, Do it for Dad, Take a Swing Against Prostate Cancer, and National Prostate Cancer Awareness Month.

  Websites regarding the 7 Most Common Cancers:

• Breast:  http://www.breastcancer.org/ or  http://www.nationalbreastcancer.org/
• Colon/Rectum:  www.ccalliance.org/  or  http://www.nci.nih.gov/cancertopics/types/colon-and-rectal

• Cervix:  http://www.nccc-online.org/ or http://www.cervicalcancercampaign.org/index.htm
• Endometrial:  http://www.cancer.gov/cancerinfo/pdq/treatment/endometrial/patient/ or http://www.mskcc.org/mskcc/html/317.cfm
• Prostate:  http://www.4npcc.org/ or http://www.prostatecancerfoundation.org/site/pp.asp?c=itIWK2OSG&b=46403
• Lung:  http://www.lungcancer.org/ or http://www.alcase.org/
• Pancreatic:  http://www.pancan.org/ or http://www.pancreatica.org/