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| Friends of Cancer Research is a non-profit organization
that creates effective collaboration between medical
professionals, scientists, public officials, patients, and
other research advocates in order to accelerate innovation in
cancer prevention, detection, and treatment.
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| Friends is working hard to promote cancer research in
Washington and across the country. Find out what you can do to support Friends.
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 Friends of Cancer Research 2231
Crystal Drive, Su 200 Arlington, Virginia 22202 (703)
302-1503 www.focr.org | |
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Budget Update:
2008
Supplemental Bill in Senate includes increased
funding for NIH and FDA
Senator Tom
Harkin (D-IA) Chairman, and Senator Arlen Specter
(R-PA), ranking member of the Labor-HHS
Appropriations Subcommittee, have long been
advocates for increasing NIH appropriations to
support the ground-breaking research being
conducted at the agency.
Displaying
their continued commitment the committee has
approved $400 million for NIH to fund
approximately 700 additional research grants in FY
2008. Senator Harkin stated, "With this
funding package we can give our own country an
economic boost, (and) bolster our investment in
life-saving research..." The supplemental bill is
tentatively scheduled to have a Senate markup
after the memorial day recess.
Senator Herb Kohl
(D-WI), Chairman of the Senate Agriculture, Rural
Development, Food and Drug Administration
Appropriations Subcommittee, announced May
7th that $275 million in additional
funds for the FDA will be added to the 2008 War
Supplemental Bill. Senator Kohl stated in a press
release, "With serious concerns about the FDA
lacking the resources to do its job, this much
needed increase in funding means the agency can
hire more food inspectors, open offices overseas,
expand data collection and take other necessary
steps to prevent our food and drug safety being
severely compromised."
The $275 million includes
$125 million for food safety activities, $100
million for medical product and drug safety
activities, $40 million for modernizing FDA
science and workforce, and $10 million to upgrade
FDA facilities and
laboratories.
BUDGET
FY09: FY 2009 budget is still
progressing. A deal has been reached for the
budget resolution, with House and Senate conferees
to be named this week. It is anticipated that a
conference will be held and work will be finished
by the end of next week. A budget figure was
not disclosed
Hill Update:
Friends applauds Congressional passage of
the Genetic Information Nondiscrimination
Act.
On May 1, the House of Representatives
passed the Genetic Information Nondiscrimination
Act (GINA) by a 414-1 vote. The bill,
which prohibits health insurers and employers from
discriminating against individuals on the basis of
their genetic information, previously passed the
Senate with a 95-0 vote and is expected to be
signed into law by the President. The passage of
this legislation allows for the advancement of
research and the emerging science of personalized
medicine. | |
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 (L-R)
Lance Armstrong, Elizabeth Edwards, and Senator
Ted Kennedy Arrive at Senate hearing Thursday, May
8th
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Senate Hearing Focuses on
Collaboration and the Future of the 'War on
Cancer'
The U.S.
Senate Committee on Health, Education, Labor and
Pensions (HELP) held a full committee hearing on
"Cancer: Challenges and Opportunities in the
21st Century" on Thursday
May 8, 2008. The
committee is considering new cancer legislation
at a time when a leveling off of National Cancer
Institute (NCI) funding for independent
investigators and laboratories is widely
regarded as hampering the pace of cancer
research.
Distinguished panelists included
Mrs. Elizabeth Edwards, Senior Fellow, The
Center for American Progress; Mr. Lance
Armstrong, Founder, Lance Armstrong
Foundation; Mr. Steve Case, Chairman and CEO,
Revolution Health; Dr. Edward Benz, President,
Dana Farber Cancer Institute; Mr. Greg Simon,
President, Faster Cures; and Ms. Hala Moddelmog,
CEO, Susan G. Komen For the Cure. Full text of
panelists' testimony as well as video of the
hearing can be viewed at the following
link: HELP
Hearing
Senator Ted Kennedy (D-MA),
chairman of HELP, voiced his, and the
committees, dedication to renewing the war on
cancer that was started thirty seven years ago
with passage of the National Cancer Act. Sen.
Kennedy acknowledged the significant progress
that has been made since 1971, while calling for
a renewed urgency in the fight against cancer.
He stressed the need for comprehensive
legislation to address the nation's cancer
crisis and for an "entirely new model for
research, prevention and treatment."
Mrs. Edwards focused on the
importance of widely available and adequate
health insurance, and access for all to the
proper screening, care and promising treatments
and trials available today.
Mr. Armstrong focused on the
importance of early detection and that "no
matter what age, race or sex, everyone has the
right to the proper health care - health care
that can prevent, help with early detection, and
treat disease."
Mr. Case's testimony stressed the
need for collaborations between top cancer
centers, biotech companies, and the NCI and
FDA, while challenging the community to
change the way we continue to fight cancer. Mr. Case
drew comparisons of how lessons learned from
building the internet can be translated into
fighting cancer. He addressed the need to move
away from "the model that treats cancer based on
where it appears in the body and toward a model
where the focus is on signaling pathways, new
technologies, biomarkers and novel clinical
trials."
Dana-Farber President Edward Benz,
MD, urged legislators to "view cancer research
through the widest possible prism" and warned
that the progress made in the fight thus far
could come to a standstill if funding is not
increased.
"At a time when science is giving
us the opportunity to make the decisive
difference, the trend in this country in health
care and research policy and financing is going
to prevent us from taking advantage of that
opportunity," Benz said at the hearing, adding
"We have the science in hand. We can develop
therapies. The next step is to get them out in
the field where they'll make a
difference."
Greg Simon of Faster Cures focused on the
need for a changed strategy in the fight against
cancer and willingness to challenge the long
held assumptions about cancer research. "We
can't cure any of the diseases we're wrestling
with, with the system we've got," said Simon. He
also called for a "renewed commitment to
supporting medical research through meaningful
investments of financial and human capital." Mr.
Simon echoed his fellow panelists calls for
collaboration by emphasizing the necessity to
"reshape the research enterprise by forging
strong collaborations and partnerships between
researchers in government, academia, nonprofit,
and industry."
Sen. Kennedy plans to
file comprehensive cancer legislation
soon that will encourage more
coordination of cancer research, prevention and
treatment.
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Friends, Howard University and Avon Foundation
Co-Host Town Hall
Friends is proud to
be partnering with Howard University Cancer Center and
the Avon Foundation to co-host a Breast Cancer
Educational Symposium titled, "Stopping Breast Cancer
Before It Starts."
The
symposium will be held:
Tuesday May
20th, 2008 at 1:00pm in the Howard University
Hospital Ambulatory Care Auditorium in
Washington, DC.
This town hall style event will target
the public and media to increase awareness and
understanding of breast cancer research. The event
will focus on clinical research and ongoing clinical
trials in breast cancer with the goal of helping the
public and media learn to translate scientific findings
into useful information and calls to action.
The event is
open to the public, and will feature a six member panel
consisting of: Congresswoman Donna Christensen (D-VI);
Dr. Anna Barker, Deputy Director, National Cancer
Institute; Dr. Lucile Adams-Campbell, Director Howard
University Cancer Center; Dr. Marc Hurlbert, Director,
Avon Foundation Breast Cancer Crusade; Dr. LaSalle
Leffall, Jr., Charles R. Drew Professor, Department of
Surgery Howard Univiversity Cancer Center; and Ms.
Kimberly Higginbotham, cancer survivor. The panel
discussion will be moderated by Dr. Wayne Frederick,
Deputy Director Howard University Cancer
Center.
Directly
following the town hall will be a health fair focused on
providing the public with a variety of information on
research, education and treatment of a broad range of
cancers. Participants in the health fair are: Howard
University Cancer Center, Cancer Information Services,
American Cancer Society, Smith Farm, District Orthopedic
Appliances, AstraZeneca, Johnson & Johnson, National
Cancer Institute, Friends of Cancer Research, The
Whitman-Walker Clinic, Novartis Oncology, Society for
Women's Health Research and the George Washington
University Mobile Mammography Program.
For more
information please contact:
Heather Chaney at
703.302.1540 or HChaney@focr.org |
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Avon Foundation Sponsors
Community
Outreach
For two days, May 3rd and
4th, more than 3,500 people participated in
the 2008 Avon Walk for Breast Cancer Washington, DC,
raising more than $8.1million. During the closing
ceremonies of the event Sunday afternoon, grants were
awarded to a variety of prominent organizations in the
greater Washington D.C. metro area to support their
breast cancer programs.
Dr. Ellen
Sigal accepted a check on behalf of Friends of Cancer
Research from award-winning actress and Honorary Chair
of the Avon Walk, Reese Witherspoon.The check, a generous grant of $45,000.00,
will support breast cancer outreach and educational
programs.
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(L-R) Dr. Jeff Allen, Executive Director,
Friends; Reese Witherspoon, Honorary Chair, Avon Walk;
Dr. Ellen Sigal, Chair, Friends. (Photo courtesy of Matt
Mendelsohn Photography) |
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 (L-R) Dr.
Geoffrey M. Wahl, Past-President, AACR; Dr. Ellen
Sigal, Chair, Friends; and Dr. Margaret Foti, CEO,
AACR
Friends Chair, Dr. Ellen Sigal
Honored at AACR Annual
Meeting
The American Association for Cancer
Research (AACR) Annual Meeting, attended by over
17,000, was held in San Diego, CA April
12-16.
Friends Chair Dr. Ellen Sigal was named the
2nd annual recipient of the AACR Margaret
Foti Award for Leadership and Extraordinary
Achievements in Cancer Research during the
awards session. The Award was established to
"recognize a true champion for cancer research,
whose leadership has had a major impact on the
field." Dr. Sigal
accepted the award by urging all in attendance to
work closely with policy makers to raise cancer
research to a national priority, and increase
awareness of their incredible work.Her full speech
can be viewed at the following link: AACR
Speech (Dr. Ellen Sigal)
Dr. Sigal also
served as co-host with Dr. Anna Barker, Deputy
Director NCI, at a session entitled, "Cancer
Research Funding: Alternative Models and
Resources." Representatives from the Avon
Foundation, Canary Foundation, and The Prostate
Cancer Foundation joined Dr. Sigal and Dr. Barker
to discuss how their organizations have funded a
broad range of programs that have had a
significant impact on advancing cancer
research.
Dr. Sigal also had the honor to serve
as a panelist during a chemo-prevention symposium
discussing the current barriers and opportunities
associated with the development of products
designed to decrease or eliminate cancer
risk.
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IOM Holds Forum on FDA
Science
On April
21, the Institute of Medicine (IOM) hosted a conference
to discuss a report released at the end of 2007 entitled
"FDA Science and Mission at Risk." The report has
continued to receive attention for its bleak description
of the state of science at the FDA due to chronic
underfunding.
Friends of
Cancer Research Chairperson Ellen Sigal served as a
panelist at the forum and provided the patient
perspective. "The people impacted most by a lack of
science at the agency are patients," Dr. Sigal
stated. She
went on to described the integral role of FDA in
research and the adverse impact that a lack of resources
for the agency has on scientific advancement and
innovation, and the affect an underfunded FDA has on
patients.
U.S. Congresswoman Rosa
DeLauro (D-CT) also spoke at the conference and provided
her views on the future challenges faced by FDA. Rep. DeLauro is
the chair of the committee responsible for FDA
funding.
Other participants included Dr. Gail Cassell,
lead author of the report; Dr. Janet Woodcock, Director
of the FDA Center for Drug Evaluation and Research; and
Friends board member and Fox Chase Cancer Center
Chancellor Dr. Bob Young.
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