Friends of Cancer Research Newsletter
MAY 2008

In The News

"Armstrong urges Congress to Renew War on Cancer"
Associated Press
May 8, 2008

"Congress working for drug safety"
Baltimore Sun
May 6, 2008

"Gaining Ground on Cancer"
Boston Globe
April 28, 2008

"Too Few Funds to Fight Cancer in US"
San Diego Union-Tribune
April 18, 2008

Our Mission
Friends of Cancer Research is a non-profit organization that creates effective collaboration between medical professionals, scientists, public officials, patients, and other research advocates in order to accelerate innovation in cancer prevention, detection, and treatment.

Friends is working hard to promote cancer research in Washington and across the country. Find out what you can do to support Friends.
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Friends of Cancer Research
2231 Crystal Drive, Su 200
Arlington, Virginia 22202
(703) 302-1503
www.focr.org

Budget Update:

2008 Supplemental Bill in Senate includes increased funding for NIH and FDA

 
Senator Tom Harkin (D-IA) Chairman, and Senator Arlen Specter (R-PA), ranking member of the Labor-HHS Appropriations Subcommittee, have long been advocates for increasing NIH appropriations to support the ground-breaking research being conducted at the agency.
 
Displaying their continued commitment the committee has approved $400 million for NIH to fund approximately 700 additional research grants in FY 2008.  Senator Harkin stated, "With this funding package we can give our own country an economic boost, (and) bolster our investment in life-saving research..." The supplemental bill is tentatively scheduled to have a Senate markup after the memorial day recess. 
 

Senator Herb Kohl (D-WI), Chairman of the Senate Agriculture, Rural Development, Food and Drug Administration Appropriations Subcommittee, announced May 7th that $275 million in additional funds for the FDA will be added to the 2008 War Supplemental Bill. Senator Kohl stated in a press release, "With serious concerns about the FDA lacking the resources to do its job, this much needed increase in funding means the agency can hire more food inspectors, open offices overseas, expand data collection and take other necessary steps to prevent our food and drug safety being severely compromised." 

The $275 million includes $125 million for food safety activities, $100 million for medical product and drug safety activities, $40 million for modernizing FDA science and workforce, and $10 million to upgrade FDA facilities and laboratories. 

BUDGET FY09:
FY 2009 budget is still progressing. A deal has been reached for the budget resolution, with House and Senate conferees to be named this week. It is anticipated that a conference will be held and work will be finished by the end of next week. A budget figure was not disclosed
 

Hill Update:

Friends applauds Congressional passage of the Genetic Information Nondiscrimination Act.

 

On May 1, the House of Representatives passed the Genetic Information Nondiscrimination Act (GINA) by a 414-1 vote.  The bill, which prohibits health insurers and employers from discriminating against individuals on the basis of their genetic information, previously passed the Senate with a 95-0 vote and is expected to be signed into law by the President. The passage of this legislation allows for the advancement of research and the emerging science of personalized medicine.



(L-R) Lance Armstrong, Elizabeth Edwards, and Senator Ted Kennedy Arrive at Senate hearing Thursday, May 8th

Senate Hearing Focuses on Collaboration and the Future of the 'War on Cancer'

 

The  U.S. Senate Committee on Health, Education, Labor and Pensions (HELP) held a full committee hearing on "Cancer: Challenges and Opportunities in the 21st Century" on Thursday May 8, 2008. The committee is considering new cancer legislation at a time when a leveling off of National Cancer Institute (NCI) funding for independent investigators and laboratories is widely regarded as hampering the pace of cancer research.

 

Distinguished panelists included Mrs. Elizabeth Edwards, Senior Fellow, The Center for American Progress; Mr. Lance Armstrong, Founder, Lance Armstrong Foundation; Mr. Steve Case, Chairman and CEO, Revolution Health; Dr. Edward Benz, President, Dana Farber Cancer Institute; Mr. Greg Simon, President, Faster Cures; and Ms. Hala Moddelmog, CEO, Susan G. Komen For the Cure. Full text of panelists' testimony as well as video of the hearing can be viewed at the following link: HELP Hearing

 

Senator Ted Kennedy (D-MA), chairman of HELP, voiced his, and the committees, dedication to renewing the war on cancer that was started thirty seven years ago with passage of the National Cancer Act. Sen. Kennedy acknowledged the significant progress that has been made since 1971, while calling for a renewed urgency in the fight against cancer. He stressed the need for comprehensive legislation to address the nation's cancer crisis and for an "entirely new model for research, prevention and treatment."

 

Mrs. Edwards focused on the importance of widely available and adequate health insurance, and access for all to the proper screening, care and promising treatments and trials available today.

 

Mr. Armstrong focused on the importance of early detection and that "no matter what age, race or sex, everyone has the right to the proper health care - health care that can prevent, help with early detection, and treat disease."

 

Mr. Case's testimony stressed the need for collaborations between top cancer centers, biotech companies, and the NCI and FDA, while challenging the community to change the way we continue to fight cancer.  Mr. Case drew comparisons of how lessons learned from building the internet can be translated into fighting cancer. He addressed the need to move away from "the model that treats cancer based on where it appears in the body and toward a model where the focus is on signaling pathways, new technologies, biomarkers and novel clinical trials."

 

Dana-Farber President Edward Benz, MD, urged legislators to "view cancer research through the widest possible prism" and warned that the progress made in the fight thus far could come to a standstill if funding is not increased.

 

"At a time when science is giving us the opportunity to make the decisive difference, the trend in this country in health care and research policy and financing is going to prevent us from taking advantage of that opportunity," Benz said at the hearing, adding "We have the science in hand. We can develop therapies. The next step is to get them out in the field where they'll make a difference."

 

Greg Simon of Faster Cures focused on the need for a changed strategy in the fight against cancer and willingness to challenge the long held assumptions about cancer research. "We can't cure any of the diseases we're wrestling with, with the system we've got," said Simon. He also called for a "renewed commitment to supporting medical research through meaningful investments of financial and human capital." Mr. Simon echoed his fellow panelists calls for collaboration by emphasizing the necessity to "reshape the research enterprise by forging strong collaborations and partnerships between researchers in government, academia, nonprofit, and industry."

 
Sen. Kennedy plans to file comprehensive cancer legislation soon that will encourage more coordination of cancer research, prevention and treatment.

Friends, Howard University and Avon Foundation Co-Host Town Hall
 
Friends is proud to be partnering with Howard University Cancer Center and the Avon Foundation to co-host a Breast Cancer Educational Symposium titled, "Stopping Breast Cancer Before It Starts."

The symposium will be held:

 Tuesday May 20th, 2008 at 1:00pm in the Howard University Hospital Ambulatory Care Auditorium in Washington, DC.

 
This town hall style event will target the public and media to increase awareness and understanding of breast cancer research. The event will focus on clinical research and ongoing clinical trials in breast cancer with the goal of helping the public and media learn to translate scientific findings into useful information and calls to action.
 

The event is open to the public, and will feature a six member panel consisting of: Congresswoman Donna Christensen (D-VI); Dr. Anna Barker, Deputy Director, National Cancer Institute; Dr. Lucile Adams-Campbell, Director Howard University Cancer Center; Dr. Marc Hurlbert, Director, Avon Foundation Breast Cancer Crusade; Dr. LaSalle Leffall, Jr., Charles R. Drew Professor, Department of Surgery Howard Univiversity Cancer Center; and Ms. Kimberly Higginbotham, cancer survivor. The panel discussion will be moderated by Dr. Wayne Frederick, Deputy Director Howard University Cancer Center.

 

Directly following the town hall will be a health fair focused on providing the public with a variety of information on research, education and treatment of a broad range of cancers. Participants in the health fair are: Howard University Cancer Center, Cancer Information Services, American Cancer Society, Smith Farm, District Orthopedic Appliances, AstraZeneca, Johnson & Johnson, National Cancer Institute, Friends of Cancer Research, The Whitman-Walker Clinic, Novartis Oncology, Society for Women's Health Research and the George Washington University Mobile Mammography Program.

 

For more information please contact:

Heather Chaney at 703.302.1540 or HChaney@focr.org


Avon Foundation Sponsors Community Outreach

 
For two days, May 3rd and 4th, more than 3,500 people participated in the 2008 Avon Walk for Breast Cancer Washington, DC, raising more than $8.1million. During the closing ceremonies of the event Sunday afternoon, grants were awarded to a variety of prominent organizations in the greater Washington D.C. metro area to support their breast cancer programs.

 

Dr. Ellen Sigal accepted a check on behalf of Friends of Cancer Research from award-winning actress and Honorary Chair of the Avon Walk, Reese Witherspoon.The check, a generous grant of $45,000.00, will support breast cancer outreach and educational programs.

(L-R) Dr. Jeff Allen, Executive Director, Friends; Reese Witherspoon, Honorary Chair, Avon Walk; Dr. Ellen Sigal, Chair, Friends. (Photo courtesy of Matt Mendelsohn Photography) 


(L-R) Dr. Geoffrey M. Wahl, Past-President, AACR; Dr. Ellen Sigal, Chair, Friends; and Dr. Margaret Foti, CEO, AACR

Friends Chair, Dr. Ellen Sigal Honored at AACR Annual Meeting

 

The American Association for Cancer Research (AACR) Annual Meeting, attended by over 17,000, was held in San Diego, CA April 12-16.  Friends Chair Dr. Ellen Sigal was named the 2nd annual recipient of the AACR Margaret Foti Award for Leadership and Extraordinary Achievements in Cancer Research during the awards session. The Award was established to "recognize a true champion for cancer research, whose leadership has had a major impact on the field." Dr. Sigal accepted the award by urging all in attendance to work closely with policy makers to raise cancer research to a national priority, and increase awareness of their incredible work.Her full speech can be viewed at the following link: AACR Speech (Dr. Ellen Sigal)

 

Dr. Sigal also served as co-host with Dr. Anna Barker, Deputy Director NCI, at a session entitled, "Cancer Research Funding: Alternative Models and Resources." Representatives from the Avon Foundation, Canary Foundation, and The Prostate Cancer Foundation joined Dr. Sigal and Dr. Barker to discuss how their organizations have funded a broad range of programs that have had a significant impact on advancing cancer research.  Dr. Sigal also had the honor to serve as a panelist during a chemo-prevention symposium discussing the current barriers and opportunities associated with the development of products designed to decrease or eliminate cancer risk.   


IOM Holds Forum on FDA Science

 

On April 21, the Institute of Medicine (IOM) hosted a conference to discuss a report released at the end of 2007 entitled "FDA Science and Mission at Risk."  The report has continued to receive attention for its bleak description of the state of science at the FDA due to chronic underfunding.

 

Friends of Cancer Research Chairperson Ellen Sigal served as a panelist at the forum and provided the patient perspective. "The people impacted most by a lack of science at the agency are patients," Dr. Sigal stated.  She went on to described the integral role of FDA in research and the adverse impact that a lack of resources for the agency has on scientific advancement and innovation, and the affect an underfunded FDA has on patients.

 

U.S. Congresswoman Rosa DeLauro (D-CT) also spoke at the conference and provided her views on the future challenges faced by FDA.  Rep. DeLauro is the chair of the committee responsible for FDA funding.  Other participants included Dr. Gail Cassell, lead author of the report; Dr. Janet Woodcock, Director of the FDA Center for Drug Evaluation and Research; and Friends board member and Fox Chase Cancer Center Chancellor Dr. Bob Young.