FEBRUARY 2005

> Interviews with the offices of Senator Dianne Feinstein and Congresswoman Deborah Pryce
> In the Spotlight with Dan Glickman, President & CEO of the MPAA
> Leavitt confirmed new  HHS Secretary
> Forbes article warns that drug safety concerns could slow cancer research
> Town Hall event featuring Congressman Michael Bilirakis
> Washingtonian Magazine Awards Luncheon




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FOCR is a non-profit organization that raises awareness and provides public education on cancer research in order to accelerate the nation's progress toward prevention and treatment of cancer.

 


The Capitol Hill Files

The Senate Cancer Coalition and the House Cancer Caucus:
Fighting Cancer On The Hill

This past month, Friends of Cancer Research interviewed the offices of Senator Dianne Feinstein (D-CA), who is a co-chair of the Senate Cancer Coalition, and Congresswoman Deborah Pryce (R-OH), who is a co-chair of the House Cancer Caucus. These two women and the organizations they help lead, work in a bipartisan manner to educate their fellow members about cancer issues and promote policies beneficial to cancer patients and researchers.  Friends of Cancer Research would like to thank the leaders and members of these organizations and encourage others to sign up.  In fact, the Senate Cancer Coalition is presently recruiting new members. 

The interviews consisted of basic questions about each organization’s mission, membership, history, accomplishments, current priorities, and future goals. Below are some highlights. To read both interviews, please click on our on-line feature article: Fighting Cancer On The Hill.

The Senate Cancer Coalition

The basics:  Chaired by Senators Sam Brownback (R-KS) and Diane Feinstein (D-CA), “the Senate Cancer Coalition is a bipartisan task force of senators who have a strong interest in cancer research, education, prevention and treatment…Each year, the Senate Cancer Coalition holds several hearings to receive expert testimony from leaders of the cancer community on a wide range of issues involving cancer. ....Although the Coalition cannot write or modify legislation, our hearings focus on the latest issues facing cancer detection, treatment, research and prevention...”

And more...
"We live in an exciting and promising time in cancer research and have great hope for finding a cure for cancer in our lifetime.  This year, the Senate Cancer Coalition will look at new and emerging technologies in the treatment and detection of cancer and will continue to examine the future of cancer research in the genomic era and what we can do to improve access to cancer prevention and treatment...."

The House Cancer Caucus

The basics: The House Cancer Caucus is a bipartisan group in the House of Representatives comprised of approximately 80 Members of Congress and chaired by Reps. Deborah Pryce (R-OH), Sue Myrick (R-NC), Lois Capps (D-CA), and Steve Israel (D-NY).  The caucus works to "educate Members of Congress about the many issues surrounding cancer and to advance federal policies that further cancer research; improve prevention, diagnosis, and treatment; and enhance the quality of life of cancer patients…”  


And more...

"Many members of the caucus have their own stories and many are using their fervor and passion to work within their capacities to help reduce the devastating burden of cancer in America and throughout the world…The House Cancer Caucus is always looking for new educational briefings to help set up on Capitol Hill for Members of Congress and their staff to attend."

For the complete interviews please see Fighting Cancer On The Hill


SPOTLIGHT on DAN GLICKMAN, President & CEO of the MPAA

Currently the President and CEO of the Motion Picture Association of America (MPAA), Dan Glickman reigns over the multi-billion dollar American motion picture, home video, and television industries.  Prior to joining the MPAA, Mr. Glickman was Secretary of Agriculture (1995 to 2001), where he oversaw monumental changes in improving American's diet and nutrition.  Glickman's ascent to the national and international policy scene began when the native Kansan represented his state's  4th Congressional District for 18 years in the U.S. House of Representatives.  In this edition of "In the Spotlight," Glickman shares his goals of involving media and congress to raise awareness and resources in the fight against cancer.  For the complete interview, please see www.focr.org/news/spotlight.html


NIH OUTLOOK

Funding Update

Friends of Cancer Research recently joined 35 other health policy organizations in a sign on letter from “One Voice Against Cancer” to the White House respectfully urging both the Administration and Congress to make funding for cancer research and programs a priority in fiscal year (FY) 2006. The letter made several funding recommendations including a 6% increase of $1.7 billion for the NIH (for a total of $30.1 billion).

The letter also voiced strong support for the NCI’s Professional Judgment budget, which “represents our national battle plan against cancer, outlining the critical core research that is currently underway as well as the most promising and extraordinary research opportunities.” This year’s Professional Judgment budget request is $6.17 billion for FY 2006. As explained in the letter, this request is arrived at “through an open and public process and reflects the best thinking of cancer researchers, patients, clinicians, and other constituency groups and is focused on the Institute’s goal of eliminating suffering and death from cancer by the year 2015.” Although the Professional Judgment budget represents the ideal funding level, the signatories also identified a $386 million increase (8%) for NCI as the minimum amount necessary to protect our cancer research enterprise and maintain the current pace of discovery.

The health policy community has a tough road ahead in pursuing these funding recommendations as the White House’s budget is likely to call for flat or reduced funding for many health related agencies like NIH.

Leavitt Confirmed as HHS Secretary, Replacing Tommy Thompson

President George W. Bush signs the executive order establishing his Great Lakes Interagency Task Force, with EPA Administrator Michael Leavitt and James Connaughton, chairman of the Council on Environmental Quality, in the Oval Office Tuesday, May 18, 2004. The task force brings together ten agency and Cabinet officers to provide strategic direction on Federal Great Lakes policy, priorities and programs. White House photo by Paul Morse.

Former Utah Governor and EPA administrator Mike Leavitt will be the new HHS Secretary .  He will take over the position during a time when several of the department’s marquee units are under financial pressure and national scrutiny.  Health and Human Services, by Leavitt’s own account, controls the expenditure of nearly 25 percent of the federal government’s tax revenues through agencies such as the NIH/National Cancer Institute, the FDA, and the Medicare program. 

During his confirmation hearing, Leavitt expressed his desire to address the department’s ethical concerns: “HHS always needs to keep in mind the ethical implications of its decisions, to ensure that Americans can be proud, not only of the department’s scientific expertise, but also of the moral judgment of its leaders.”  He went on to say, “At NIH we must march forward with life-saving research, and always hold the scientists, universities, and laboratories accountable for results.”  The new HHS Secretary voiced strong support for preventative care and stated his belief that America deserved the very best in modern medical technology.

Secretary Leavitt will immediately have a full agenda including the ongoing  attention to safety issues at FDA, a long term funding crunch at federally overseen health coverage programs, and perceived conflict of interest on the part of HHS scientists.  (Picture from www.whitehouse.gov)


Gottlieb Warns that Drug Safety Concerns Could Slow Discoveries in Cancer Research

In a recent Forbes article entitled “FDA Moves Cancer Cures Into The Slow Lane,” Dr. Scott Gottlieb (formerly of the FDA) expressed great concern over what he sees as a trend towards what may be undue conservatism in drug approvals.  If Dr. Gottlieb’s assertion is correct, this is only the tip of an iceberg that may begin to slow or halt promising research and clinical trials for diseases like cancer.

Gottlieb writes: If the tenor of the discussion at the advisory committee is any guide, then the FDA could take a much harder stand when it comes to the accelerated approval of new cancer drugs--requiring overwhelming evidence that a drug can melt away the majority of tumors before qualifying it for rapid approval. This could add years to the development of new cancer drugs, and require more of them to undergo all three phases of clinical trials, rather than letting the most promising new drugs that target unmet medical needs onto the market after only two rounds of clinical study, as is now customary.”

Safety is the main reason for the FDA's existence, according to the article.  The agency was founded in response to government hearings and public outcry over unsafe drugs decades ago, and its approval to market a drug is generally considered the highest possible endorsement of safety in the world today.  With the Vioxx ‘scandal’ and resultant criticism, the value of FDA approval has come into greater question than at any time in recent memory. 


UPCOMING FOCR SYMPOSIUM ON PREVENTION AND EARLY DETECTION

With the recent news of cancer surpassing heart disease as the number one killer in Americans under age 85, there has been a renewed urgency in the cancer community to approach cancer in the same way in which heart disease was successfully tackled: with a focus on prevention and early detection.  On Monday February 7th in Tampa, Florida, Friends of Cancer Research together with The H. Lee Moffitt Cancer Center & Research Institute will present an interactive symposium open to the public titled “The Next Steps to Fulfilling the Promise of Cancer Prevention and Early Detection.” Featuring some of the nation’s foremost cancer experts, the event will address barriers to and opportunities in cutting edge fields such as biomarkers, nanotechnology, and proteomics.

Moderated by Susan Dentzer, Health Correspondent and Head of the Health Policy Unit of the NewsHour with Jim Lehrer on PBS, the panel will include special guest, Congressman Michael Bilirakis (R-FL, 9th) and Executive Editor of Fortune Magazine, Clifton Leaf.  Also participating are Dr. Anna Barker, Deputy Director, National Cancer Institute; Dr. Gerard T. Kennealey, VP, Medical Oncology, AstraZeneca Pharmaceuticals; Dr. Rick Pazdur, Director, Oncology Drug Products Division, Food and Drug Administration; and Dr. Thomas A. Sellers, Associate Center Director for Cancer Prevention and Control, H. Lee Moffitt Cancer Center & Research Institute.  The event will take place from 9-11 AM at the Moffitt Cancer Center’s Stabile Research Building Auditorium.  For more information, please contact info@focr.org.


FOCR Chair and President Honored at
"Washingtonian of the Year" Awards Luncheon


Above: Washingtonian Magazine Publisher Eleanor Merrill presents Marlene Malek (far left) and Ellen Sigal with their "Washingtonian of the Year" Award at the Awards Luncheon this past month.  Photo credits: Matthew Worden

Following the announcement in January that Washingtonian Magazine had named Friends Chair, Dr. Ellen Sigal, and Friends President, Marlene Malek, “Washingtonians of the Year,” the Washingtonian honored the two women this past month at an awards luncheon in DC held at the Willard InterContinental Hotel. Sigal and Malek, along with fifteen notable Washingtonians, were recognized at the event for making DC a better place.  Eleanor Merrill, Publisher of The Washingtonian, welcomed the honorees and guests, and Gorden Peterson, Anchor of WJLA-TV presented the awards to honorees including Mayor Anthony Williams and Meet the Press host, Tim Russert.


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