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Goal and Objectives
Our goal is to mobilize public support for cancer research so
that we can accelerate the nation’s progress toward the
prevention and cure of cancer. Toward that end, our objectives
are to:
- Demonstrate the benefits of cancer research;
- Illustrate the need for answers to this terrible disease;
and
- Explain the investment needed for the task ahead.
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Congressional Update
In
March, Secretary of Health and Human Services Tommy Thompson testified on
the proposed budget for FY 2004 before committees in both the House and the
Senate. Senator Arlen Specter (Republican-Pennsylvania), Chairman of the
Senate Appropriations Committee questioned the adequacy of the
Administration’s FY 2004 budget request for the NIH, which provides only a
2% increase. In previous remarks to the press, Secretary Thompson stated
that the actual increase to research would be much
more than 2%, claming as “a result of one-time projects being funded in
fiscal year 2003, and not needing to be re-financed, actual NIH research
investment will rise by $1.9 billion, or 7.5 percent.” The actual
proposed dollar increase for the NIH is $686 million, giving it a total
budget of $27.7 billion.
To
read Secretary Thompson’s remarks in their entirety, please click here:
http://www.hhs.gov/news/press/2003pres/20030203a.html
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| B. |
Friends
Accomplishments During
the month of March Friends has been solidifying an event, entitled
“Confronting Cancer Today,” co-hosted with the
Woodrow
Wilson
International
Center for Scholars. The event, to be held on May 8th in
Los Angeles,
is designed to illuminate the opportunities and barriers in cancer research.
Two extraordinary panels will convene to discuss issues of policy and the
drug approval process as well as the integration of new and emerging
science. The first panel will focus on science at the frontier including the
promise of advances in proteomics, understanding the human genome, and the
signature of cancer cells and will also discuss the challenges to discovery
and eventual dissemination to patients.
The second
panel will consider current FDA regulatory policy and the barriers to
bringing safer and more effective drugs to the public. Dr. Michael Bishop,
Nobel Laureate and Chancellor of UCSF, will give the keynote address.
Sherry Lansing and Betty Ford will offer introductory remarks.
Friends also is exploring developing a forum in collaboration with New York
University intended to build awareness about the need for a relationship
between academia, government, and industry. Collaborative and translational
research is critical for the future of medicine. This forum will help
educate the public and policymakers as to the steps necessary to forge
successful partnerships and create new scientific centers.
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New
Executive Director
On
March 24, 2003, Candace J. Rosen, a
Georgetown
and Stanford-educated lawyer-bioethicist was appointed Executive Director of
Friends of Cancer Research. “We are delighted to welcome Candace to our
leadership group,” stated Dr. Sigal. “Her experience in the fields of
genetics, health care policy, law, and bioethics will enhance our work and
expedite achievement of our research-supportive goals,” Dr. Sigal added.
Ms.
Rosen, who previously served as Director of Policy for the Genetic Alliance,
also was a consultant to the HHS Secretary’s Advisory Committee on Genetic
Testing— working on projects related to state informed consent requirements
for clinical and public health tests as well as low income and indigent
access to genetic services. Additionally, Ms. Rosen was a lawyer in Reed
Smith’s corporate health care practice representing a full spectrum of
health care providers and manufacturers and advocating for legislative,
regulatory, and policy changes to incorporate, encourage, and fund
innovative medical technology, clinical lab, therapeutics, and
pharmaceutical applications. Ms. Rosen has worked on health policy issues
for the Biotechnology Industry Organization (BIO), HRSA, and the ABA AIDS
Coordinating Committee. Ms. Rosen earned a B.A. with honors from Stanford
University, a law degree from Georgetown University, and has completed
coursework at the Kennedy Institute of Ethics at Georgetown.
“I am
eagerly anticipating capacity-building opportunities at Friends of Cancer
Research – opportunities that I hope will advance the war on cancer and
expedite delivery of new treatments and therapies that will benefit patients
across America and the world,” said Ms. Rosen.
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Ellen Sigal |
Marlene Malek |
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Chair |
President |
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